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Written by cdutcher   
Thursday, 03 May 2012 19:35

 

The estimates of the number of MPS patients in US is extremely unreliable, many due to the fact that few people know of the disorders. Most doctors will go their entire career without ever meeting or seeing a patient with an MPS condition. I can only talk about the number of estimated patients with Hunters (MPSII), it is believed that between 400-500 individuals in the country have it. Although these conditions are extremely rare their treatment called Enzyme Replacement Therapy (ERT) for most of them. ERP is a treatment and not a cure, the earlier a patient is diagnosed and put onto ERT the higher their quality of life will be.

 

Last Updated on Thursday, 17 May 2012 18:32
 
Would you have a child if there was a 50% chance they would have a severe medical disorder?
 
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Christopher Dutcher
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