RESOURCES AND PARTNERS PDF Print E-mail
Written by cdutcher   
Thursday, 03 May 2012 18:58

 

National MPS Society

A website about for USA patients and families affected by MPS disorders.
http://www.mpssociety.org/

Hunter Patients

Hunter Patients is a website created by Shire HGT, the maker of Elaprase, and it provides information about Hunter syndrome, managing symptoms, and the treatments available.
http://www.hunterpatients.com/

Elaprase

Elaprase is a website to better understand MPS II enzyme replacement therapy Elaprase (idursulfase)
http://www.elaprase.com/

GOLD

Global Organization for Lysosomal Storage Disorders, is an international collaboration of scientific and medical associations, patient groups, and commercial organizations dedicated to improving the lives of all patients with a lysosomal storage disease.

http://www.goldinfo.org

Saving Case

The website of Melissa Hancock Hogan and her son Case
http://www.savingcase.com

Trey Purcell and MPS II

A website for Trey Purcell in Vancouver, BC
http://www.treypurcell.com/

Canadian MPS Society

A website for Canadian patients and families affected by MPS disorders.
http://www.mpssociety.ca/

Dentedego

http://www.dentedego.com/

The Worlds first social networking support site for people in need of purposeful real conversation of addictions, disorders, obsessions and compulsions. As many of the new social networking sites provide conversation that is more self absorbed and surface orientated, dented ego.com will allow a place where there not only is conversation of day to day, but a place with solid substance, answers, groups and forums from people in the entertainment/sports and political world to you and me, all with a clear goal of helping each other. dented ego.com may just be the site that helps save the world.

Sillicomvally

http://www.sillicomvally.com/

Mission:

We hope to make Sillicom Vally the one-stop destination for anyone looking to donate to or find information about any non-profit, charity, or

socially conscious business.

Description:

We wanted to make the act of giving fun, cool, and exciting. Even though we take philanthropy and sharing seriously, we thought it was time to do it in a whole new way.

TreatmentDiaries

http://www.TreatmentDiaries.com/

About:

A social network centered on purpose and privacy for anyone touched by illness.

Mission

- Support the need for knowledge and connections across shared experiences —most important when coping with a medical condition

- Enable privacy and anonymity

- Help people seeking answers and solutions about treatments, hospitals, doctors and support systems in an easy-to-use forum

- Facilitate simple, efficient, high value connections through relevant data sharing

 

The Social Batch

http://thesocialbatch.tumblr.com/

About

"Embracing big ideas that will ultimately change the perceptions of others." - The Social Batch Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it Twitter:@thesocialbatch

Mission

Embracing big ideas that will ultimately change the perceptions of others.

Description

At The Social Batch, we create a meaningful relationship between brand and customer, to enhance the way people think, feel and behave. We offer Social Media Marketing,Facebook Marketing,Custom Facebook Tabs, Email Marketing,Target Marketing,Lead Generation,Graphic Design,Custom Blog,Web Development,Search Engine Optimization,Moblie Web Development,Moblie Map Optimization and Product Development.

 



 

Last Updated on Monday, 28 May 2012 15:27
 
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